Privacy Statement for “People at the Centre – a conversation with the people of Scotland”

“People at the Centre” is a programme run by the Health and Social Care Alliance Scotland, funded by Scottish Government, that is looking to capture people’s health and wellbeing experience of COVID-19, and how people want to access health and care support and services as we respond to, and look beyond COVID-19, in order to inform the remobilisation of healthcare services. The programme is also capturing the views and perspectives of people who have accessed social care support to inform the Review of Adult Social Care. As a part of this the ALLIANCE have begun a conversation with the people of Scotland, developed in partnership with Healthcare Improvement Scotland – Community Engagement.

How you can get involved?

If you are a resident of Scotland you can register to attend the events, which will be held online.

What Personal Information do we need from you?

Registration

To take part in the events, participants will be required to provide their name and email address to the ALLIANCE.  If you have any accessibility requirements you may need to disclose these at registration.

Conversation

The conversation will capture your views, opinions and experience of health and social care.  Participants should be aware that in taking part you may disclose information about yourself that you did not intend such as your religion, sexual orientation, disability etc. This information may be captured in the report, but it will not be attributed to specific individuals.

Equality Monitoring

Equality monitoring information is also being captured, including data relating to gender, sexual orientation, disability, age, religion and ethnic group.  Providing monitoring information is optional and is being gathered to monitor the representation of the People at the Centre programme and safeguard against unequal practice, as well as to identify how equality characteristics intersect with experiences of healthcare. 

What happens with the information in the project?

Registration

Your name, email address and accessibility requirements will be used to register you for the event.

Conversation

The data from the conversation will be aggregated, analysed and captured in a summary report which will be shared with the ALLIANCE and will form part of the ALLIANCE’s recommendations to the Mobilisation Recovery Group (MRG), the MRG newsletter updates and the ALLIANCE’s recommendations to the Social Care Review Panel. The Mobilisation Recovery Groups is made up of advisory group comprising key stakeholders and decision makers from across the health and social care landscape.  Membership of the MRG is attached as an appendix to this document. The Social Care Review Panel is made up of key stakeholders and decision makers across the social care landscape. Membership of the Social Care Review Panel is attached as an appendix to this document.

Monitoring

Monitoring information will be shared with the ALLIANCE, however, this information will not be captured in the report unless you have disclosed this during the conversation and independently of the monitoring information.

How the information will be used?

The ALLIANCE

These reports and updates will be hosted on the ALLIANCE website, promoted through social media and may be shared in future ALLIANCE publications. Once the information has been made public it will be accessible worldwide. 

The ALLIANCE may contact you to advise you that the report has been published and to provide you with a copy, and for feedback on the event.

With Whom will the information be shared including transfer of data to a third country or internationally

Accessibility requirements may be shared with relevant accessibility providers e.g. BSL interpreters.

This event will be held using Zoom.  While the event is not designed to elicit personal information from participants, should you register to attend the event you must be aware that Zoom.us transfers personal data to the USA and that any personal data you choose to share will be transferred to a country that does not provide adequate protection and that no adequate safeguards aimed at providing protection for the data are being implemented.

All published information will be shared worldwide.

Retention of Data

Registration

Your name and email address will retained by the host for one year in order to contact you to provide you with a copy of the report.  Unless the ALLIANCE holds your information for another legitimate purpose, in which case it will be retained in line with this purpose.

Conversation

The information captured in the conversation will be retained by the ALLIANCE for 6 years from the completion of the project and any published information will be kept permanently.

The ALLIANCE will retain the summary reports for 6 years from the completion of the project and any published information will be kept permanently.

Monitoring

Monitoring information will be retained by the ALLIANCE for 6 years from its collection.

The ALLIANCE will retain this information for 6 years from the completion of the project.

What are the potential risks to you in taking part?

We aim to minimise any risk to participants, but you should be aware of the following risk factors:

• Facilitator may have to break confidentiality if information is disclosed which suggests there is a risk of imminent harm to a person – including you

• Confidentiality cannot always be guaranteed in a group setting because other participants may discuss what they have heard.  However, the expectation for all participants is that confidentiality should be upheld and we ask all participants to adhere to this.

• Once the information is published in documents, social media and the website, it will be public.

• This event will be held over Zoom.  While the event is not designed to elicit personal information from participants, should you register to attend the event you must be aware that Zoom.us transfers personal data to the USA and that any personal data you choose to share will be transferred to a country that does not provide adequate protection and that no adequate safeguards aimed at providing protection for the data are being implemented.

Your rights

You have the right to withdraw your consent at any time.  However, you must note that the ALLIANCE will not be able to remove information already included in statistical information or that is no longer identifiable.

You also have the right to object to how your personal information is processed, the right to access, correct, sometimes delete and restrict the personal and sensitive personal information we use.  Together with the right to receive your information in a machine-readable format for transfer to another organisation and not to be subject to a decision based solely on automated processing, including profiling.

Data Protection

The event host, its sub-contractors and the ALLIANCE will not distribute or disclose your personal information to third parties unless we have your written permission or are required by law to do so. We comply with the Data Protection Act 2018 and GDPR 2018 when handling your personal information. If you have any concerns about how we use your personal information, contact our Data Protection Officer at dpo@alliance-scotland.org.uk.. Alternatively, you have the right to complain to the ICO https://ico.org.uk/concerns/ 

For the ALLIANCE’s full privacy policy, please visit their website.  If you have any concerns about how the ALLIANCE use your personal information, contact their Data Protection Officer at DPO@alliance-scotland.org.uk.

By participating you are consenting to us processing your personal and special category (sensitive) information for the above purposes, which is our legal basis for processing your personal information.

Consent

In consideration of the “People at the Centre – a conversation with the people of Scotland” I confirm I understand, accept and agree that:

1.    I have read and understood that I am agreeing to participate in an online event for the People at the Centre project and that my personal experiences may be discussed during the workshop.

2.    I have been informed that my information will be shared with the ALLIANCE in the form of a summary report, and have been provided with access to the ALLIANCE’s privacy policy and information on the project.  I understand that the ALLIANCE will not sell, distribute or lease personal information to third parties without my written permission unless required to do so by law.

3.    I understand my participation is voluntary and I may withdraw at any time.

4.    I agree the event will be considered a “safe space” and I shall not disclose any information discussed during the event outwith it.

5.    I understand that the facilitator may have to breach confidentiality if information is disclosed which suggests there is a risk of imminent harm to a person.

6.    I confirm that by participating in the event I am consenting to the ALLIANCE processing my personal and sensitive personal information for the above purposes.

MRG Membership

The MRG is chaired by the Cabinet Secretary for Health and Sport with attendance from the Minister for Mental Health and Minister for Public Health, Sport and Wellbeing.

Other attendees are:

External Partners

• Cllr. Stuart Currie, Health & Social Care Spokesperson, Convention of Scottish Local Authorities (COSLA); supported by Sally Loudon/Nicola Dickie

• Sir Lewis Ritchie, Mackenzie Professor of General Practice

• Theresa Fyffe, Director, Royal College of Nursing (Scotland)

• Dr Lewis Morrison, Chair of Scottish Council, British Medical Association

• Dr Carey Lunan, Chair, Royal College of General Practitioners (Scotland)

• Dr David Chung, Chair, Royal College of Emergency Medicine (Scotland)

• Mr Miles Mack, Chair, Academy of Medical Royal Colleges and Faculties in Scotland

• Sandra Campbell, Convenor, Scottish Social Services Council

• Joanna MacDonald, Chair, Adult Social Care Standing Committee

• George Crooks, Chief Executive,  Digital Health & Care Institute

• James O’Connell, Unite, National Staff Side representative

• Linda Walker, GMB, National Staff Side representative

• Claire Ronald,  Chartered Society of Physiotherapy, National Staff Side representative

• Jane Anderson, UNISON National Staff Side representative

• Andrea Wilson, Convener, Allied Health Professions Federation Scotland (AHPFS)

   

   Service Delivery

• David Garbutt, NHS Board Chairs Group representative

• Pauline Howie, NHS National Boards

• John Burns, NHS Board Chief Executive’s representatives

• Peter Murray, Chair IJB, Chairs & Vice Chairs Group

• Cllr Kieron Green, Vice Chair, IJB Chairs & Vice Chairs Group

• Eddie Fraser, Chief Officers Group representative

• Andrew Kerr, SOLACE, Health and Social Care Spokesperson

• Annie Gunner Logan, Coalition of Care and Support Providers

• Andrew Buist, Chair, British Medical Association GP Committee (Scotland)

• Harry McQuillan, Chair, Community Pharmacy (Scotland)

• David Quigley, Chair, Optometry Scotland

• Philip Grigor, Scotland Director, British Dental Association

• Donald MacAskill, Chief Executive, Scottish Care

• Angela Leitch, Chief Executive, Public Health Scotland

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  Regulators

• Peter Macleod, Chief Executive, Care Inspectorate

• Carole Wilkinson, Chair, Health Improvement (Scotland)

   

  Service Users

• Ian Welsh, Chief Executive, The ALLIANCE

   

  Scottish Government Core team

• John Connaghan, Interim Chief Executive NHS Scotland

• Elinor Mitchell, Interim Director General for Health & Social Care

• Jason Leitch, National Clinical Director

• Fiona McQueen, Chief Nursing Officer

• Marion Bain, Deputy Chief Medical Officer

• Aidan Grisewood, Interim Director, Primary Care

• Richard Foggo, Director of Covid Population Health

• Christine Mclaughlin, Director of Planning

• Donna Bell, Director Mental Health and Social Care

• Head of Health & Social Care Analytics

• Iona Colvin, Chief Social Work Adviser

• Carolyn McDonald, Chief Allied Health Professions Office

• Andrew Fleming, (Secretariat and Programme Management)

• Helen MacDonald (Secretariat and Programme Management)

• Other input as agenda items require

   

   

  Social Care Review Panel Membership

   

• Malcolm Chisholm, Former Scottish Minister for Health and Community Care 2001 – 2004

• Anna Dixon: Chief Executive, Centre for Ageing Better

• Caroline Gardner: Auditor General 2012–20

• Stuart Currie: East Lothian Councillor

• Göran Henriks: Chief Executive of Learning and Innovation, Qulturum, Jönköping County, Sweden

• Ian Welsh: Chief Executive, the Alliance

• Jim Elder-Woodward: Chair of the Scottish Independent Living Coalition (SILC)